tag:blogger.com,1999:blog-5692103117922373992024-03-14T04:56:26.531+00:00Diary of a Cardiac MummyEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.comBlogger61125tag:blogger.com,1999:blog-569210311792237399.post-79901059019864752802013-09-03T12:23:00.002+01:002013-09-03T12:23:58.382+01:00Ethans Appointment<div dir="ltr" style="text-align: left;" trbidi="on">
We are very lucky that we have access to a psychologist at the Freeman. She works with Ethan to help with his issues that he has surrounding going into hospital, bloods etc. <br />
<br />
Ethan's next Cardiac appointment is 19th September and we were told to expect further surgery after this one. We shall see. At the moment I feel like I am staring down the barrel of a gun. <br />
<br />
As with all of us, we have up and down days. Today is most definately a down day!<br />
<br />
Stay healthy xxx <br />
<br />
Love<br />
<br />
Sam & Ethan xx</div>
Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com1tag:blogger.com,1999:blog-569210311792237399.post-30012088227173958372013-07-18T12:18:00.001+01:002013-07-18T12:18:52.028+01:00<div dir="ltr" style="text-align: left;" trbidi="on">
Hi Folks, <br />
<br />
Its been a while since we have blogged but I promise we'll keep you updated more!. <br />
<br />
Ethan is doing great in school, far better than we thought actually. He is loving school and his friends. <br />
<br />
Since we last blogged, Ethan has had numerous balloons & stents, as his pulmonary stenosis seemed particularly aggresive. <br />
<br />
We are hoping that might last a couple of years until his Rastelli needs to be re-done, but we were advised that they would be looking to take him in after his next appointment and start the usual round of CT Scans etc. <br />
<br />
He's been left with some left sided hypertrophy due to the stenosis that they dont think will get any better now. <br />
<br />
Hes lovely, and coping very well. He has physio every week for his legs and tries his best to keep up.<br />
<br />
xxxxx <br />
</div>
Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com1tag:blogger.com,1999:blog-569210311792237399.post-68546270442425182922012-02-24T17:37:00.000+00:002012-02-26T17:40:03.377+00:00D-day for the Stents - Cardio Appointment!Well, on echo the cardio is happy that the stent has not slipped. He is happy to leave him for a few months and see how it goes. <br /><br />Which is good news!<br /><br />I cannot help but worry, that he had all these things happening inside him with little or no symptoms that it was happening! Scary Stuff.<br /><br />Anyway, if Ethan is happy, and the cardio is happy - who am I to argue!<br /><br />Thank you as always for all your love and support xxxEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com2tag:blogger.com,1999:blog-569210311792237399.post-81713143960717473492012-02-16T17:13:00.002+00:002012-02-26T17:37:19.948+00:00Cardiac Catheter 2012Well, Ethan had his clinic appointment in January. It wasn't good news. He has significant Right Ventricle Hypertrophy and enlargement. <br /><br />This is due to his heart trying to pump the blood through the stenotic pulmonary artery. <br /><br />So they admitted him for a Cardiac Catheter on Valentines Day of all days!<br /><br />He went down at 10.30am after a pre-med he was in a very good mood! <br /><br /><a href="http://3.bp.blogspot.com/-u7dqhkCZm00/T0ptqfoNIeI/AAAAAAAAATM/lXBghoASGoo/s1600/Ethan%2BCath%2B14-02-12.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 239px; height: 320px;" src="http://3.bp.blogspot.com/-u7dqhkCZm00/T0ptqfoNIeI/AAAAAAAAATM/lXBghoASGoo/s320/Ethan%2BCath%2B14-02-12.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5713499654084960738" /></a><br /><br />He was supposed to have been down a couple of hours, but at 2.30pm we were still waiting... nervously!<br /><br />Dean overheard a conversation at the nurses station where they'd been asked to check for an urgent cross match 4 litres "for a patient bleeding out... patient name... Ethan" He went white. <br /><br />The Doctor realised he had heard it and came then, and explained that he had lost a little blood and may need a transfusion. As it turned out he didn't. <br /><br />We got to go see him up in recovery at 3.30pm. 5 (very long!)hours after we had put him on the table for them to knock him out.<br /><br />Our cardiologist was very unhappy and has explained that the pressures in the right side of Ethan's heart are nearly double what they should be and that's why he has had the Hypertrophy and why they right side is enlarged. <br /><br />They spent a long time trying to get into the pulmonary artery, the stenosis was very bad. Eventually when they got into it, they put a stent in.<br /><br />Unfortunately, then, they couldn't get back into the artery to "consolidate" the stent - this involves blowing the balloon up in the artery to help the stent "stick" to the artery. This meant that the stent was wobbling around inside. <br /><br />There was nothing that they could do about it, and we need to watch him in case the stent becomes loose and drops into his heart. <br /><br />Anyway, the little they could do seems to have relieved some of the pressure in his heart. So we were sent away with an appointment to go back in a week to check the artery hadn't slipped.Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com0tag:blogger.com,1999:blog-569210311792237399.post-72192113954179000522011-08-02T10:51:00.001+01:002011-08-02T10:51:53.891+01:00Sorry We havent been aroundReally sorry that we havent been around, alls ok, but life takes over! going to update today xxx lots of love and I hope your all well xxxEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com2tag:blogger.com,1999:blog-569210311792237399.post-37080168363779086272010-06-21T17:29:00.000+01:002010-06-21T17:39:30.485+01:00AppointmentsSorry I haven't updated for a while, things kind of take over. <br /><br />Since Ethan stopped his oral antibiotics he has had a bad chest and chesty cough - not bad enough for him to go in more than once but so he sounds like a 90 year old smoker.<br /><br />We have our appointment with Dr Spencer on Thursday about his chest and possible asspiration so I'm hoping they give us some answers.<br /><br />At Ethans first outpatients since coming home they wanted to do a detailed echo to check his new diagnosis of hypoplastic pulmonary artery. But in true Ethan style he wouldn't let them. So we have to go in for a sedated echo and also bloods to check for infection as he has had temperatures on and off since we got out of hospital - not huge temps though so not a major concern (just a niggle!). <br /><br />In general, he is doing well he has been napping and not eating huge amounts. But he is miles better than before the operation so thats good! Here he is in full England supporter mode!<br /><br /><a href="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/TB-Vm3-6XMI/AAAAAAAAAMk/3tvAw7VegVs/s1600/12062010299.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 240px; height: 320px;" src="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/TB-Vm3-6XMI/AAAAAAAAAMk/3tvAw7VegVs/s320/12062010299.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5485267366255942850" /></a>Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com4tag:blogger.com,1999:blog-569210311792237399.post-2813359265572277682010-06-19T17:32:00.000+01:002011-08-02T10:53:41.973+01:00High Calorie Foods<p class="mobile-photo"><a href="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/TBzxdlgenmI/AAAAAAAAAMc/6yM8NoKdzEM/s1600/19062010325-738217.jpg"><img src="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/TBzxdlgenmI/AAAAAAAAAMc/6yM8NoKdzEM/s320/19062010325-738217.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5484523936817258082" /></a></p><br /><br />These are the high calorie shakes that Ethan gets on prescription - ask your dietician about Peadisure, or Calogen. You can also get additives to put in their drinks.Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com0tag:blogger.com,1999:blog-569210311792237399.post-18278753970822995982010-06-19T17:31:00.000+01:002010-06-19T17:32:58.426+01:00High calorie shakes<p class="mobile-photo"><a href="http://4.bp.blogspot.com/_Ad5PD9mUyJ8/TBzxOohju1I/AAAAAAAAAMU/eggNiNrmxS4/s1600/19062010323-778427.jpg"><img src="http://4.bp.blogspot.com/_Ad5PD9mUyJ8/TBzxOohju1I/AAAAAAAAAMU/eggNiNrmxS4/s320/19062010323-778427.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5484523679929056082" /></a></p>I found these high cal milk shakes in tesco extra thought you might like them . They do them in strawberry choc and banana xEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com1tag:blogger.com,1999:blog-569210311792237399.post-15421135299932941122010-05-21T15:10:00.000+01:002010-05-21T15:12:17.576+01:00A Lovely Day!<iframe frameborder="0" style="width:150px;" src="http://www.photobox.co.uk/album/hosted/386971558"></iframe><br /><br />Ethans recovery is going well, we are waiting for an appointment for a sedated echo on the ward plus bloods to check he has no infection left over.<br /><br />We had a lovely day at alnwick castle yesterday, where they filmed Harry Potter - just check out the pictures!Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com4tag:blogger.com,1999:blog-569210311792237399.post-27476424950349662572010-04-29T15:56:00.000+01:002010-04-29T15:58:08.116+01:00Come in the doctor!<p class="mobile-photo"><a href="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/S9megOb_h9I/AAAAAAAAAK0/6-8oZyYEJBc/s1600/29042010203-788117.jpg"><img src="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/S9megOb_h9I/AAAAAAAAAK0/6-8oZyYEJBc/s320/29042010203-788117.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5465573899259316178" /></a></p>Ethan and josh have been playing doctors today. I must say mr potato head has been a very good patient! I on the other hand took some time out and went to see my friends at the craft house. They are such amazing friendly people. I can see why the studio is always full! X xEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com5tag:blogger.com,1999:blog-569210311792237399.post-2141636107303632722010-04-24T14:45:00.000+01:002010-04-24T14:46:31.164+01:00Feeling better!<p class="mobile-photo"><a href="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S9L2NxViLkI/AAAAAAAAAJ8/4j6X6rXyrME/s1600/24042010183-791165.jpg"><img src="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S9L2NxViLkI/AAAAAAAAAJ8/4j6X6rXyrME/s320/24042010183-791165.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5463700014396223042" /></a></p>Today the sun is shining and ethan is making the most of it! He is still very wobbly and has a fear of people he doesn't know but he is getting there slowly. He has lost weight. He is now only 10.7 kilo's so hopefully he will put that back on soon xEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com4tag:blogger.com,1999:blog-569210311792237399.post-67490232442307831412010-04-22T15:00:00.000+01:002010-04-22T15:01:56.353+01:00Raising awareness of chd<p class="mobile-photo"><a href="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S9BW1C7TtkI/AAAAAAAAAHs/zmsZbeaB2FE/s1600/22042010177-716353.jpg"><img src="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S9BW1C7TtkI/AAAAAAAAAHs/zmsZbeaB2FE/s320/22042010177-716353.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5462961817319093826" /></a></p>Here is story that was run in the evening chronicle today about ethan.Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com2tag:blogger.com,1999:blog-569210311792237399.post-88440316689378461892010-04-18T11:55:00.001+01:002010-04-18T11:59:37.398+01:00We are home!!Wow what a week! We went from sepsis on Sunday to home this Saturday!!! crazy - it shows how strong my wonderful boy is.<br /><br />We should really have come home on Friday, but the Echo & Xray showed some plural effusion (fluid between the lungs and chest wall) Thankfully, it wasn't big enough to require any medical intervention and we just have to keep an eye on him.<br /><br />I am so pleased to have my gorgeous boy home. He is such a strong boy. I want to thank everyone for their continued help and support - even if it was just a thought of us, everything helps.<br /><br />Grandma grumps needs a special mention, she came up when she didn't have to just to help out and let me go home for a sleep. Thank you xx<br /><br />Im going to try get a nice picture of him today so will post later.Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com3tag:blogger.com,1999:blog-569210311792237399.post-65782478350143375182010-04-15T07:16:00.000+01:002010-04-15T07:17:57.420+01:00Nearly happy?<p class="mobile-photo"><a href="http://1.bp.blogspot.com/_Ad5PD9mUyJ8/S8avlfafVaI/AAAAAAAAAHc/lmVrRHZrEmo/s1600/14042010174-777421.jpg"><img src="http://1.bp.blogspot.com/_Ad5PD9mUyJ8/S8avlfafVaI/AAAAAAAAAHc/lmVrRHZrEmo/s320/14042010174-777421.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5460244656855930274" /></a></p>The magician came yesterday. And got a small smile on the morning. We think he needs two weeks of iv antibiotics according to micro biology. I'm also asking for prayers for laura, she went for transplant monday. She is critical but stable. And for kodi, just a baby but has sat on the berlin heart for months, she had a transplant yesterday! XxEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com2tag:blogger.com,1999:blog-569210311792237399.post-68446029885834795302010-04-15T07:12:00.000+01:002010-04-15T07:13:27.935+01:00Fluid resus - septic again!<p class="mobile-photo"><a href="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S8auiFdhckI/AAAAAAAAAHU/0BV7a-5Li7s/s1600/13042010168-707937.jpg"><img src="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S8auiFdhckI/AAAAAAAAAHU/0BV7a-5Li7s/s320/13042010168-707937.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5460243498838094402" /></a></p>Well what an eventful few days. He went up at 2pm to get a line into him and they ended up having to do full fluid resus on him. He became unstable and they needed quick access so had to put needle's into his bone marrow to give him fluid and drugs. They then managed to secure his femoral leg vein. So, he didn't want to come off the ventilator. A half hour procedure became 2.5 hours for us to see him. We went in and his vent tube was coming out of his mouth, they'd had to ventilate him quickly. They had jelly on his eyes - which as you can see from his picture he had a reaction to. They put him on two very strong antibiotics. He was septic (again). He decided after an hour he didn't really like the tube in his mouth and vomited everywhere. I'm ashamed to say it was too much for me. I had to leave him with his daddy. I've never cried seeing him in picu but for some reason the thought of them going into his bone, the jelly over his eyes as he was trying to open them and him vomiting was just too much. Needless to say if they'd have watched and waited like they wanted to originally then it could have been a very different story. So that was another night in picu! Tuesday he lay in bed all day not happy. Yesterday afternoon we gave him a dose of codene to see if it helped him out of bed. I'm glad to say he was like a different child. We went to the play room, he played laughed and ate for the first time in two weeks :) thank god.Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com1tag:blogger.com,1999:blog-569210311792237399.post-65942138334990265152010-04-12T13:25:00.000+01:002010-04-12T13:26:24.595+01:00My poorly boy<p class="mobile-photo"><a href="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S8MRcOXA1_I/AAAAAAAAAHM/DDb1kRlGjA0/s1600/12042010167-784596.jpg"><img src="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S8MRcOXA1_I/AAAAAAAAAHM/DDb1kRlGjA0/s320/12042010167-784596.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5459226349891803122" /></a></p>Ethan is going upto picu at 2pm to have anesthetic to get a line into him. They tried last night but were unable to get access. He has been spiking temperature's all day. Going upto 39. He weighed 10.9 kilo. So has lost weight too, but i'm not to worried about that. Praying for our friends who got a call for a heart hope its suitable xEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com3tag:blogger.com,1999:blog-569210311792237399.post-14401383250503567242010-04-12T10:01:00.000+01:002010-04-12T10:02:53.039+01:00Spiking temperatures :(<p class="mobile-photo"><a href="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/S8LhvX1VJ1I/AAAAAAAAAHE/d2_VYNeatwo/s1600/12042010166-773040.jpg"><img src="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/S8LhvX1VJ1I/AAAAAAAAAHE/d2_VYNeatwo/s320/12042010166-773040.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5459173902294263634" /></a></p>Ethan has been spiking temperature's since his neck line came out yesterday. Cant get bloods to check for infection. Peripheries shut down. Just got to watch and wait. Neck line was sent to check for bacteria anyway so result should be back tonight or tomorrow. Also Praying for a very brave girl. She is waiting for a heart and has had a phone call this morning. Still waiting to see if its good enough x :)Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com1tag:blogger.com,1999:blog-569210311792237399.post-49823648052331915082010-04-11T16:44:00.001+01:002010-04-11T16:44:54.882+01:00<table width="482" border="0" cellpadding="0" cellspacing="0" bgcolor="#FFFFFF"> <tr> <td><img src="cid:1" width="482" height="187"></td> </tr> <tr> <td align="center"><table width="100%" border="0" cellspacing="0" cellpadding="0"> <tr> <td height="10"> </td> </tr> <tr> <td align="center"><table width="432" border="0" cellpadding="10" cellspacing="1" bgcolor="#CCCCCC"> <tr> <td bgcolor="#FFFFFF"><font class="boldtext" color="#000000" size="3" face="Arial, Helvetica, sans-serif"><strong><font color="#666666">Sender:</font></strong></font> <strong><font class="boldtext" color="#666666" size="3" face="Arial, Helvetica, sans-serif"><font class="normtext"> 07867788909 </font></font><font color="#666666" size="3" face="Arial, Helvetica, sans-serif"> </font></strong></td> </tr> </table></td> </tr> <tr> <td> </td> </tr> <tr> <td align="center"><table width="432" border="0" cellpadding="10" cellspacing="1" bgcolor="#CCCCCC"> <tr> <td bgcolor="#FFFFFF"><table width="100%" border="0" cellspacing="0" cellpadding="0"> <tr> <td width="250"><font class="boldtext" color="#666666" size="2" face="Arial, Helvetica, sans-serif"><strong>Your message:</strong></font></td> </tr> <tr> <td> </td> </tr> <tr> <td> <table width="100%" border="0" cellspacing="0" cellpadding="0"> <tr><td><font class="normtext" color="#666666" size="2" face="Arial, Helvetica, sans-serif">+07867788909<p>Ethan's neck line out. But gave me a fright. Went shakey and blue. Think it was bacteria on outside of his neckline entering blood. Spiked at 39 but had brufen and has come down x thought i was in for a re run of the septacemia last year. X</p><br></font></td></tr> </table> </td> </tr> </table> </td> </tr> </table></td> </tr> <tr> <td> </td> </tr> <tr> <td align="center"><table width="432" border="0" cellspacing="0" cellpadding="0"> <tr> <td> <p><font class="boldtext" color="#666666" size="3" face="Arial, Helvetica, sans-serif"><strong>Sending a reply:</strong></font><font class="normtext" color="#666666" size="2" face="Arial, Helvetica, sans-serif"><br> <br> You can reply by email to this mobile number within the next 7 days.<br> <br> </font><font color="#E20074" size="1" face="Webdings"><</font><font class="normtext" color="#666666" size="2" face="Arial, Helvetica, sans-serif"> only include attachments in jpeg or wav format.<br> </font> <font class="normtext" color="#666666" size="2" face="Arial, Helvetica, sans-serif"><font color="#E20074" size="1" face="Webdings"><</font> The total message size should not exceed 300kb.<br> </font> <font class="normtext" color="#666666" size="2" face="Arial, Helvetica, sans-serif"><font color="#E20074" size="1" face="Webdings"><</font> You can only reply once, and it must be within 7 days of receiving this message.</font></p> </td> </tr> </table></td> </tr> <tr> <td> </td> </tr> </table></td> </tr> </table> Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com0tag:blogger.com,1999:blog-569210311792237399.post-661202625155138942010-04-10T12:18:00.000+01:002010-04-10T12:19:23.708+01:00Has a very tired boy today<p class="mobile-photo"><a href="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/S8BevEcILRI/AAAAAAAAAG8/EaLW6_9ZVSI/s1600/10042010158-763709.jpg"><img src="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/S8BevEcILRI/AAAAAAAAAG8/EaLW6_9ZVSI/s320/10042010158-763709.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5458466911111621906" /></a></p>Ethan has been very tired today and yesterday. He is getting his drains and pacing wires out today. And his central line needs to come out tomorrow as its been in so long there is a risk of infection. If his lft's and clotting come down again tomorrow then he wont need another line in but if not they will need another way of getting his pavolex into him xEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com1tag:blogger.com,1999:blog-569210311792237399.post-5311107168097395652010-04-09T14:36:00.000+01:002010-04-09T14:37:06.956+01:00Out of bed!<p class="mobile-photo"><a href="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/S78tg6Te4WI/AAAAAAAAAG0/2qCGPM8EJD8/s1600/09042010155-726957.jpg"><img src="http://3.bp.blogspot.com/_Ad5PD9mUyJ8/S78tg6Te4WI/AAAAAAAAAG0/2qCGPM8EJD8/s320/09042010155-726957.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5458131316826366306" /></a></p>He was up and out of bed again today, here's the proof! Captopril to be increased and melranone weaned. Still on the pavolex for his liver. Still got the line in his neck to take bloods, they will need to take that out sunday at the latest. drains still draining but is reducing. Slow and sure he is getting there. Spoke to his respiritory consultant today. He wants to see ethan in a few months and if he still thinks he is aspirating then they would be looking to stop all oral feeds. This is such a blow. Mainly because we worked so hard to get his ng tube out, if they'd have wanted a peg then it wouldn't have been so bad. But to see this child who has come so far put back would really be ashame. So we are keeping our fingers crossed. Love to all xEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com1tag:blogger.com,1999:blog-569210311792237399.post-67569809453241309732010-04-08T17:02:00.000+01:002010-04-08T17:03:27.568+01:00<p class="mobile-photo"><a href="http://1.bp.blogspot.com/_Ad5PD9mUyJ8/S73-UIn9NkI/AAAAAAAAAGs/oki9dCd6xdM/s1600/08042010151-707569.jpg"><img src="http://1.bp.blogspot.com/_Ad5PD9mUyJ8/S73-UIn9NkI/AAAAAAAAAGs/oki9dCd6xdM/s320/08042010151-707569.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5457797945308821058" /></a></p>Hide & seek hospital style! Can you spot the difference? His 02 is off! He is maintaining his sats at 94 >Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com3tag:blogger.com,1999:blog-569210311792237399.post-52160116013473799142010-04-07T09:37:00.000+01:002010-04-07T09:38:47.329+01:00<p class="mobile-photo"><a href="http://4.bp.blogspot.com/_Ad5PD9mUyJ8/S7xEl_mS-YI/AAAAAAAAAGk/f85-Cc8sbjc/s1600/07042010144-727330.jpg"><img src="http://4.bp.blogspot.com/_Ad5PD9mUyJ8/S7xEl_mS-YI/AAAAAAAAAGk/f85-Cc8sbjc/s320/07042010144-727330.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5457312267984107906" /></a></p>Ethan seems much happier today. Mum changed his dressing yesterday, they'd been quite itchy. Mums friend alison brought him this bear which he has been cuddling and patting his back. Wont let go of his peppa pig balloon either! Still waiting for ward round but milranone reduced a tiny bit so thats a step in the right direction!Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com4tag:blogger.com,1999:blog-569210311792237399.post-33630674211156209112010-04-07T08:09:00.000+01:002010-04-07T08:10:05.229+01:00Up and at em!<p class="mobile-photo"><a href="http://1.bp.blogspot.com/_Ad5PD9mUyJ8/S7wvzfQtPDI/AAAAAAAAAGc/T2AvD8-ikvQ/s1600/05042010138-705230.jpg"><img src="http://1.bp.blogspot.com/_Ad5PD9mUyJ8/S7wvzfQtPDI/AAAAAAAAAGc/T2AvD8-ikvQ/s320/05042010138-705230.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5457289410077604914" /></a></p>Well we got him up and out of bed today. He is still very sore. Drains still draining. Lft's and clotting still not sorted- they bruised his liver during surgery. He is still on melranone for his heart function and parvolex to help his liver heal. Along with the morphine. Though we have been able to reduce it. Hopefully drains out soon, but i dont think they will come out till his clotting is sorted and that means his liver needs to get better, keep your fingers crossed! X x love to all and hope everyone is well x x samEthans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com0tag:blogger.com,1999:blog-569210311792237399.post-57652218983408994612010-04-06T10:05:00.000+01:002010-04-06T10:08:22.272+01:00<p class="mobile-photo"><a href="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S7r6Bmn_lMI/AAAAAAAAAGU/ikbW8zH3sU8/s1600/06042010141-702273.jpg"><img src="http://2.bp.blogspot.com/_Ad5PD9mUyJ8/S7r6Bmn_lMI/AAAAAAAAAGU/ikbW8zH3sU8/s320/06042010141-702273.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5456948803967882434" /></a></p>Seems more settled today don't you think!Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com2tag:blogger.com,1999:blog-569210311792237399.post-81990395815077185082010-04-04T08:54:00.000+01:002010-04-04T08:55:21.932+01:00<p class="mobile-photo"><a href="http://1.bp.blogspot.com/_Ad5PD9mUyJ8/S7hF6nGU-DI/AAAAAAAAAGM/EkBalEpJO4Y/s1600/03042010136-721933.jpg"><img src="http://1.bp.blogspot.com/_Ad5PD9mUyJ8/S7hF6nGU-DI/AAAAAAAAAGM/EkBalEpJO4Y/s320/03042010136-721933.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5456187821789607986" /></a></p>Ethan's new sats !Ethans Mummyhttp://www.blogger.com/profile/10194310205926183667noreply@blogger.com2