It's a brave little boy...who loved Thomas the train...
Or a special heart bear...or a frog in the rain....
It's the need to remember...we are all in this plight....
It's their lives that remind us... we still need to fight!
It's in pushing ahead amidst every sorrow...
It is finding the strength to have hope for tomorrow.

Monday, 29 June 2009

Going Well

Sorry its been such a long time since I updated. Ethan has been without his NG tube since the last post and is doing well. We could do with better fluid intake but hey he is putting weight on.

He was weighed on Friday gone and was finally 9.5 kilos which is 20lb 9oz in old money ;-) he is just going into his 12-18 month tops ((finally at 21 months!)) but they are still very big - we are just finding he has gone very long and the 9-12 don't cover him properly.

This weekend gone, we have been to Rochdale and got a great welcome at The Royal Oak in Littleborough who did a 12 hour darts marathon, raffle etc in aid of the Children's Heart Unit Fund - the ward at the Freeman hospital where Ethan has been and will be treated. It was arranged by my wonderful sister and brother in law (I love you both).

I can honestly say, I have never met such a wonderful group of people. Considering they don't know us personally to have been so generous with their time - never mind their money I was so overwhelmed I had to go to the loo for a little cry.

I wish I could have put them all in my pocket and have taken them home! so lovely.. will definitely be back for a night out again soon with our new friends. Needless to say I was very much worse for wear on Sunday morning BTW if any of you guys read this - make sure you post and say hi!

Will post here to say how much was raised when we have a total figure but we did over and above what we thought. Oh and pictures will hopefuly be up soon too.


love Sam xx