Hi Folks,
Its been a while since we have blogged but I promise we'll keep you updated more!.
Ethan is doing great in school, far better than we thought actually. He is loving school and his friends.
Since we last blogged, Ethan has had numerous balloons & stents, as his pulmonary stenosis seemed particularly aggresive.
We are hoping that might last a couple of years until his Rastelli needs to be re-done, but we were advised that they would be looking to take him in after his next appointment and start the usual round of CT Scans etc.
He's been left with some left sided hypertrophy due to the stenosis that they dont think will get any better now.
Hes lovely, and coping very well. He has physio every week for his legs and tries his best to keep up.
xxxxx
Its been a while since we have blogged but I promise we'll keep you updated more!.
Ethan is doing great in school, far better than we thought actually. He is loving school and his friends.
Since we last blogged, Ethan has had numerous balloons & stents, as his pulmonary stenosis seemed particularly aggresive.
We are hoping that might last a couple of years until his Rastelli needs to be re-done, but we were advised that they would be looking to take him in after his next appointment and start the usual round of CT Scans etc.
He's been left with some left sided hypertrophy due to the stenosis that they dont think will get any better now.
Hes lovely, and coping very well. He has physio every week for his legs and tries his best to keep up.
xxxxx
