It's a brave little boy...who loved Thomas the train...
Or a special heart bear...or a frog in the rain....
It's the need to remember...we are all in this plight....
It's their lives that remind us... we still need to fight!
It's in pushing ahead amidst every sorrow...
It is finding the strength to have hope for tomorrow.

Friday, 6 February 2009

Life goes on

Its February already !! I cant believe it!

Ethan was in hospital last week after fitting, it was a febrile convulsion they decided but were unable to find an infection so we just had to mark it down to experience. I have always said Im just on this side of sane, this side of hysteria, and it just takes one thing to push me over!

This week I've learnt that no matter how angry at the world you are because your baba has chd - the world continues around you. Well, I knew that already Xmas came and went when Ethan had his first surgery and everyone was celebrating around us but now I **think** I feel more ready to be part of the world.

I feel like Ive been on autopilot for so long that I need to start and try to take time to enjoy our life. And not worry so much, He needs a family that can relax and have fun as much as we all do!

Paddy, Ethans Cardiac Liason Nurse wants to come out this month and assess him... to see if he needs to be booked in for a cardiac catheter.....arrrghhh... might give it a week or so before I ring I think !!!!

No comments:

Post a Comment

Leave us a message!!