It's a brave little boy...who loved Thomas the train...
Or a special heart bear...or a frog in the rain....
It's the need to remember...we are all in this plight....
It's their lives that remind us... we still need to fight!
It's in pushing ahead amidst every sorrow...
It is finding the strength to have hope for tomorrow.

Friday, 6 March 2009

If you ever have to ask yourself "Do I need an Ambulance?" You NEED an Ambulance!!

All I can say is it is the really scary and the first time I have actually cried in front of anyone when ethan has been poorly..

He just woke up screaming and unsettled we gave calpol and it didn't work so Dean brought him down he was scalding hot, floppy eyes roling back in his head, and grunting.... so I phoned ward and said Iwas coming in rang a friend to take Josh.

We drove but shouldve phoned an ambulance half way there his breathing got very slow but still grunting and seemed to be stopping or forcing it if that makes any sense...

So I rang the kids ward and said I'm going straight to a&e (it would have meant a further 5 min walk to the ward). We got to A&E after a horrible panicky drive and the woman was asking us whats his name, phone no, GP - I said what part of cardiac and not breathing properly don't u understand! (that's when i started crying) bearing in mind I ran in with him in an open baby grow (too hot!) and he was obviously ill!

Through to resus and all the stuff........... did bloods, exg & chest x-ray they were OK but his oxygen saturations were down to 66% heart rate 170... really bad recession - very bad! so he needed oxygen. They gave him a subutimol inhaler and it seemed to help. So we were taken up to the ward.

He still wasn't right the next day pale mottled and some slight sub and intercostal recession (where the child is working hard to breathe and the chest is pulling in) and a tracheal tug so we were kept in again. and he is much better today so we are home now.

It was like a little reunion, my lovely friend Donna is in with lily and there is another freeman bod in!

NB I did apologise to the receptionist when Ethan was ok, to be fair to her she said she didn't hear my say cardiac, so can only presume it was my tonsillitis lisp(as i called it!) but when she saw his ng tube she realised..and took me seriously.

The last thing I would say for anyone who has a child with chd or other condition is to make sure you know all their baseline/usual information eg heartrate etc... fortunately I do but although I can remember all his medications I couldn't remember his exact dosages.. Think I may write up some index cards with the info on and put them in the change bags.

Oh and the cardiac nurse isn't coming out on Monday now due to all our excitement!


  1. oh wow. hugs to you all.

  2. You poor things - I am sorry that Ethan went downhill so quickly and can well imagine what a fright it was. Thank goodness you got to hopsital so quickly. The cards are a good idea. I used to keep similar ones about Ben's condition in case I need to get someone to ring for an ambulance when we were out, then they only had to read it out to the operator.



  3. OMGosh, how frightening for you, you must have been so scared. It seems you coped well, not sure I would have kept my head in such a situation. Hope Ethan's feeling a little bit better now,
    Sue x

  4. Ethans are Ethans mum. You are the expert on his condition as you live 24/7 with him. I always advise parents that have children with cardiac problems 'ring for us...we will be there usually in minutes.'
    In a worse case scenario we have the kit and the training to resuscitate enough to get to hospital.
    I'm sure you have researched Ethans condition and amassed a whole library of knowledge. But this can fly out the window when you need to do CPR (not always but usually parents find it difficult to resus their own).
    I would advise you to keep upto date with resus practice so if the worst does happen you are the one who is going to buy us valuable time until we reach you...and it will make a big difference to the outcome.
    If Ethan seems unwell then err on the side of caution and call us out. Hope that helps.


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