It's a brave little boy...who loved Thomas the train...
Or a special heart bear...or a frog in the rain....
It's the need to remember...we are all in this plight....
It's their lives that remind us... we still need to fight!
It's in pushing ahead amidst every sorrow...
It is finding the strength to have hope for tomorrow.

Saturday, 27 February 2010

Respiritory Appointment - Check

It is slowly dawning on me the seriousness of Ethans operation. He has had Open heart surgery before - but this is major. Ethan's heart twin Alexa has just had her rastelli, and viewing her blog opened the floodgates. Im so frightened its untrue.

Please send your prayers to Alexa (

We have had the appointment with the respiritory specialist. He thinks that Ethan is aspirating food/liquid into his lungs when he swallows and this is the cause of the constant bad chests. They took an xray and it showed no pnemonia which is good. And they took some secretions to grow and see what antibiotics he needs.

They are talking about admitting him for 5 days IV antibiotics immediately before surgery.

So now, we are just waiting for the call - is it wrong that I dont want them to ring? they said the ward has been closed to scheduled surgery as they have had so many emergancies and transplants. But did say sometime in March. How scary is it that there are more and more of us everyday? people starting their chd journey, their lives turned upside down. I really feel for them.

Sending love to everyone and praying for those we know are in hospital - alexa and zeb xx love Sam x


  1. Samantha,
    I know the fear and anxiety that you are experiencing right now. It is especially harder when you are watching another little one struggle right before your own child's surgery.

    All I can tell you is to hang in there! Have some faith and trust that Ethan will do just fine in the hands of his surgeons.

    Also, keep in mind that each child with the same condition is affected differently by their defect. Try not to let another one's struggles cause you to lose hope. I know it's hard not too because I have been there MANY times!

    I'm here if you need me! Yes, I am on FB under Stefenie Jacks.

    Stef, Ryan, Wyatt and Logan

  2. Thank you so much for the prayers and the post on my blog. I look forward to reading your blog. I will pray for you girl. I didn't want that phone to ring at all, and then it did, then we got bumped and now we are on go, I suspose on my child's birthday so the crack in my heart is bigger today. But I will be praying for you and your family. Ethan is a cutie pie!


  3. Thank you Rhonda & Stef.. good luck with the ohs xx

  4. I can fully understand how you feel having also been through it myself and due to do so again soon. In the lead up to my sons last ohs, I got so worked up about it, I refused to answer the phone or open any letters in case it was our call. I wanted more than anything for it to be canceled, well, that was until we did get the call, got all worked up and prepared for it and they did cancel at the last minute, then I just wanted it over and done with.

    It is a confusing time with a mixture of emotions and I think everything you are feeling is so normal considering what you face in the coming weeks.

    ((((huge hugs)))) I can't say anything to make it any easier, but I am thinking of you and your gorgeous little man Xxxx


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