It's a brave little boy...who loved Thomas the train...
Or a special heart bear...or a frog in the rain....
It's the need to remember...we are all in this plight....
It's their lives that remind us... we still need to fight!
It's in pushing ahead amidst every sorrow...
It is finding the strength to have hope for tomorrow.

Monday, 1 March 2010

Test Results Back..

Oh I feel sick, Im sick of this waiting. I rang today to find out if anything grew from the samples of yuck (lol) they took. They have grown the same bugs that he has struggled with before H-Influenza and Strepptacocus Pnemonae. Not sure of the spelling tho!

So here we go again with another high dose of antibiotics, amoxicilin. They are still planning to admit him for IV antibiotics for 5 days before the operation.

The cardiac liason nurse is going to speak to them on Wednesday at the meeting to hopefully get a date.

He is tired now, knackered. He NEEDS this operation but I still feel like a train is hurtling towards us and there is nothing we can do to stop it.

And its not even as if this will be it - one last op. to 'fix' him. We have to endure this again 2 or 3 more times before he is 20 according to the surgeon.

Sorry, I don't mean to feel so sorry for myself!! I just feel as if we get on an even keel then here comes the damn train again - Im so angry. Im so sad. Im so angry with life. I love my son - I dont want to hand him over to anyone.

Update on AlexaPlease pray for Alexa she now has complete heartblock and needs more surgery tomorrow to give her a pacemaker.

1 comment:

  1. No need to apologize or feel like you are saying "poor me". Everything you are feeling and going through right now leading into his surgery is 100% NORMAL. I have been there MANY times and I know how hard it gets. It is never easy knowing that they will have to go through another surgery and trying to accept that there are many more to follow is even harder.

    Hang in there! I am always here if you need me or need to vent. I've been where you are so I understand completely.

    Praying Ethan gets well very soon!

    Stef, Ryan, Wyatt and Logan


Leave us a message!!