Oh I feel sick, Im sick of this waiting. I rang today to find out if anything grew from the samples of yuck (lol) they took. They have grown the same bugs that he has struggled with before H-Influenza and Strepptacocus Pnemonae. Not sure of the spelling tho!
So here we go again with another high dose of antibiotics, amoxicilin. They are still planning to admit him for IV antibiotics for 5 days before the operation.
The cardiac liason nurse is going to speak to them on Wednesday at the meeting to hopefully get a date.
He is tired now, knackered. He NEEDS this operation but I still feel like a train is hurtling towards us and there is nothing we can do to stop it.
And its not even as if this will be it - one last op. to 'fix' him. We have to endure this again 2 or 3 more times before he is 20 according to the surgeon.
Sorry, I don't mean to feel so sorry for myself!! I just feel as if we get on an even keel then here comes the damn train again - Im so angry. Im so sad. Im so angry with life. I love my son - I dont want to hand him over to anyone.
Update on AlexaPlease pray for Alexa she now has complete heartblock and needs more surgery tomorrow to give her a pacemaker.