Im really struggling to get online, no computer access at the hospital. He had the rastelli, he has had trouble with clotting. 2 units of blood and 2 units of clotting factor yesterday and still losing 40mls per hour. So they decided he needed to be taken into theatre and ventilated again late last night. He was in for just over an hour and the surgeon has said it was from an old adhesion
He is doing well and we are trying to ween the vent. I have my info now so hope to be able to email from my phone. But just in case - this is the update thread on my favourite site for cardiac parents... and I have been updating my status on facebook - which is why I put the button on the top here!!
Thank you for your prayers we need them !!