It's a brave little boy...who loved Thomas the train...
Or a special heart bear...or a frog in the rain....
It's the need to remember...we are all in this plight....
It's their lives that remind us... we still need to fight!
It's in pushing ahead amidst every sorrow...
It is finding the strength to have hope for tomorrow.

Wednesday, 17 March 2010

We got the go ahead!!

We saw the respiritory registrar today, she said his chest was clear - I still disagree.

I had a melt down on the clns (in the middle of outpatients!) and got told off - but they did give me some news.

we are to go in at the end of next week for IV Antibiotics & surgery the week after.

They said my diary just showed everything that is normal for a child like ethan prior to surgery - I feel better knowing that they understand and obviously that I got my go ahead! I suppose that I felt fobbed off as I had lost my trust in them and thought that as they werent giving us a date we werent going to be in for ages and that it was as if they didnt beleive me,.... she wanted to pinch my sats monitor! but seriously she said I am making myself ill - which I know so I am going to make the effort not to panic all the time, breathe more and paint lol x

Thanks for your help and prayers, and if anyone knows a way of updating blogger via mobile I would appreciate some instructions so I can keep you all updated!! ... x


  1. I am glad that you finally have a surgery date. Hopefully things will continue to go smoothly and he will sail right through surgery with flying colors.

    Hang in there! You are doing an amazing job advocating for him!

  2. so pleased you have a date..take care..sandra

  3. Sam,
    Thanks for leaving a note on our blog. It is so good that we can band together in this battle! We understand the place you are in right now --- the frustration, the heartache, the dread, the urgency --- our family will be praying for another "heart zipper friend" --- Ethan --- and his mummy!
    Heart hugs,


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